The waiting game...

We are in the middle of getting Con tested for genetic disorders.  Connor is very delayed physically and has a few features that draw concern to his doctor.  

On May 15 he had a genetic apt. at Cedars Hospital.  It was a VERY LONG and drawn out apt. but all in all it went well.  The doctor was concerned and requested that we go down the hall to get Con a very specific chromosome test.  I believe he is looking of something at the end of a particular chromosome.  It was a very expensive test and we were told the results should be in by the end of the month.  HELLO....TODAY IS THE END OF THE MONTH.  WHERE ARE THE RESULTS!

I asked what the doctor thought was going on with Connor and he refused to tell me.  He stated that it would just worry me and make me look on the net and he also did not want to falsely diagnose Connor (which I respect) but, now I am starting to get anxious.  I really would like to know what is going on with my son.

He was very concerned with his skull shape so we will be getting Connor a 3D CT scan on Thursday, June 3.  We are attempting to do the scan while Connor is awake.  I decided that I would prefer to try it this way first before we go ahead and put him under.  I am keeping my fingers crossed this way works.  I am also keeping my fingers crossed that I get a phone call from the doctor tomorrow.