Make up your mind...

My husband is driving me bananas. He wants a flat screen t.v. It is almost all he talks about sometimes. I think its great but he has such strict stipulations in regards to the T.V. It is almost as if the t.v. is more important than us. I found these great T.V.s at Wal-Mart today. I was so excited to share them with him just to get the brush off. Those are not good enough for Prince Eric. I am sorry but we don't have 1500 bucks to waste on a T.V. I don't even spend five bucks on underwear but 1500 is ok?

I tried explaining that we have an abundance of medical bills for Connor piling but and they are getting bigger weekly. I got the brush off.

I guess he will never be satisfied.

ACK!

The new Doo...

before
the first BUZZ

so handsome
after

The cutest pirate EVER...

Kidneys...

Turns out my worry was for nothing. Connor's kidneys are A-OK. I guess we just have an very thristy little man who needs to drink all the time.
I am assuming the kidney ultra sound will be a yearly thing as is most of his tests will be.
I still have yet to make the appointment for the cardiologist or the urologist. I best be making those soon.
I now have to find a new physical, occupational and speech therapist for Connor. With all the budget cuts, the state now makes us go through the insurance first use all those appointments up and then go back to the state.
LAME.

And it starts yet again...

Appointments that is. I thought for sure once we had a diagnosis for Connor things would be ok. I was right in the sense that we feel ok knowing what is going on but very wrong in the sense that I thought we could just move on and live like it never happened. NOPE.
Here is the line up of what is to come....
Connor will be seeing a hand surgeon today.
He will be having a kidney and pelvic ultrasound next week.
I will be making an appointment to see a pediatric cardiologist for an echo cardiogram within the next week or two.
AND
I will also be making an appointment for Connor to see a pediatric urologist shortly.
Most of these appointments are all precautionary measures due to his deletion and translocation but some are because we know it is necessary.
The hand surgeon is something I have always know we need to see. Connor has dislocated thumbs on both hands (the left is much worse). He has always seen an orthopedic doctor but now that he is getting older-it is starting to hinder his abilities to do things. This problem is also caused by his missing genes. I am so hopeful that all he will need is a little brace on his hand to stretch the muscles and tendons but I am the only one this hopeful. My family thinks surgery might be needed. I guess I will find out in a few hours.
The appointment I am most nervous about is his kidney ultrasound. I know kidney problems and heart problems are common but his heart has always sounded great. Connor is ALWAYS thirsty. It just makes me a little nervous that it could be his kidneys. I am also nervous that he might not sit still long enough for the ultra sound. Eric will be with me at that one.
The other appointments will wait until we get back from a weekend trip to see a friend marry.

My husband and son...

What would I do with out them?
They truly make my life perfect!

I have to admit-I'm jealous

I love my son and would very honestly NEVER change a thing about him but I cant help but experience bouts of jealousy on a regular basis. I see Connor every day and never bat an eye at his delays. They don't seem that significant to me when it's just us.
We had a huge weekend of birthday parties this past weekend and it was like a giant slap in the face. There were tons of children there and I was shocked at how much bigger, older and more independent they were compared to my son. Some where even born on the same day as him.
Connor had a blast as did we but I felt so sad when he wanted so bad to climb on the little play motorcycle and couldn't and then a 16 month old little boy had no problem. Connor doesn't know any different but I do. He gets so mad that he cant do something and I have to sit there and fight back tears.
I never say this out loud to anyone other then my family but-IT'S NOT FAIR.
Connor is making leaps and bounds of progress and I hope with all my soul that someday he will catch up and the struggle will be over.
I don't think of myself as a jealous person but, seeing these other children do things so naturally while my son struggles to do things they did 6 months ago aches me.
I wish there was some way to replace missing chromosomes and genes in humans.