and the bravery award goes to....

Mr. Connor Moody!!!!!!!
You have gone through and continue to go through so much with hardly a peep or complaints.
You have therapy several times a week, have to see countless numbers of doctors, wear braces on your hands and legs and have nothing but smiles to offer to people.

(before surgery)

(checking out his GIANT booties)

You had surgery yesterday morning, are in an insane amount of pain but still continue to smile and dance while laying lazily on the couch.

(right after surgery.  lots of pain)

The nurse at the hospital did a horrible job taking out your I.V. from your foot and you hardly screamed even though it was clear you were in agony.

We can hardly change your diaper right now without you wincing but somehow you still manage to look into mommy and daddy's eyes and say dack oon (love you).

For this Connor-you are by far the bravest little boy mommy and daddy will ever know and you deserve this award with love!

And it starts yet again...

Appointments that is. I thought for sure once we had a diagnosis for Connor things would be ok. I was right in the sense that we feel ok knowing what is going on but very wrong in the sense that I thought we could just move on and live like it never happened. NOPE.
Here is the line up of what is to come....
Connor will be seeing a hand surgeon today.
He will be having a kidney and pelvic ultrasound next week.
I will be making an appointment to see a pediatric cardiologist for an echo cardiogram within the next week or two.
AND
I will also be making an appointment for Connor to see a pediatric urologist shortly.
Most of these appointments are all precautionary measures due to his deletion and translocation but some are because we know it is necessary.
The hand surgeon is something I have always know we need to see. Connor has dislocated thumbs on both hands (the left is much worse). He has always seen an orthopedic doctor but now that he is getting older-it is starting to hinder his abilities to do things. This problem is also caused by his missing genes. I am so hopeful that all he will need is a little brace on his hand to stretch the muscles and tendons but I am the only one this hopeful. My family thinks surgery might be needed. I guess I will find out in a few hours.
The appointment I am most nervous about is his kidney ultrasound. I know kidney problems and heart problems are common but his heart has always sounded great. Connor is ALWAYS thirsty. It just makes me a little nervous that it could be his kidneys. I am also nervous that he might not sit still long enough for the ultra sound. Eric will be with me at that one.
The other appointments will wait until we get back from a weekend trip to see a friend marry.