Speech has been put off...

The evil stomach virus that is going around has bitten my little bug. He woke up Sunday morning covered in vomit. We lounged, snuggled and slept most of the day yesterday.

He went to bed very early last night and never made a peep. I figured the virus must be gone. I went to check on him at 4a.m. and he had gotten sick in the night and never cried out. How sad.

He seems more like himself this morning. He has kept down some pedialite and cereal. I am hoping to get some plain pasta in him after he wakes from his nap.

Sadly, our speech therapy appointment will have to wait for another day. I cant risk getting his therapist sick. I am hoping to get him in sometime again this week.

I need to start him in speech soon. He is now showing some interest in mimicking us. He now sticks out his tongue and blows raspberries. Connor is also now trying to say Elmo and for some random reason Lemonade.

He cracks me up.

Lets hope I can get him a new appointment before the new year.

And it starts yet again...

Appointments that is. I thought for sure once we had a diagnosis for Connor things would be ok. I was right in the sense that we feel ok knowing what is going on but very wrong in the sense that I thought we could just move on and live like it never happened. NOPE.
Here is the line up of what is to come....
Connor will be seeing a hand surgeon today.
He will be having a kidney and pelvic ultrasound next week.
I will be making an appointment to see a pediatric cardiologist for an echo cardiogram within the next week or two.
AND
I will also be making an appointment for Connor to see a pediatric urologist shortly.
Most of these appointments are all precautionary measures due to his deletion and translocation but some are because we know it is necessary.
The hand surgeon is something I have always know we need to see. Connor has dislocated thumbs on both hands (the left is much worse). He has always seen an orthopedic doctor but now that he is getting older-it is starting to hinder his abilities to do things. This problem is also caused by his missing genes. I am so hopeful that all he will need is a little brace on his hand to stretch the muscles and tendons but I am the only one this hopeful. My family thinks surgery might be needed. I guess I will find out in a few hours.
The appointment I am most nervous about is his kidney ultrasound. I know kidney problems and heart problems are common but his heart has always sounded great. Connor is ALWAYS thirsty. It just makes me a little nervous that it could be his kidneys. I am also nervous that he might not sit still long enough for the ultra sound. Eric will be with me at that one.
The other appointments will wait until we get back from a weekend trip to see a friend marry.