Sunday, February 7, 2010

Finally on a roll...

We finally have all of C's therapies set. He had his last session with Daren last Tuesday, Feb. 2. It was a lot easier than I thought it was going to be because Connor was in a ridiculously good mood. He shouted and smiled the whole session. We took a few pictures of Daren and Connor together and exchanged email. I will send him the photos I took and will also go ahead and send a video of Connor once he starts walking. I feel it is the least we can do considering with out him, Connor would not be where he is now.
Con started PT with his new therapist Thursday (I cant remember her name for the life of me right now) and also finally began OT. He LOVES his occupational therapist, Leslie. She is so sweet and he is smitten on her. His new physical therapist is also very nice and I like how she works. Daren was all about getting Connor to walk but now that he is almost there, it is time we start focusing on his very stiff joints and muscles. Once he is actually walking she said she will let us know weather or not she feels she needs to recommend braces or supports for his knees and legs.
His occupational therapist says that as soon as he gets more mobility in his arms and is able to rotate them more, he will be able to start feeding himself (with silverware) and using crayons and markers.
The one thing that has taken us so long to get through our insurance is Speech therapy. They wanted to deny Connor sessions because in order to get speech one would have had to suffer a stroke or some other debilitating disorder or have a birth defect. I guess our insurance company didnt considering missing genes to be a form of a birth defect. I had to send all of his genetic paperwork to the insurance to prove that he was indeed born with a missing chromosome and does indeed have an underdeveloped frontal brain all causing him to be delayed in speech. After that and after his doctor changed the prescription to chromosomal deletion, we got approved. He will be starting speech Monday. I am the most nervous about this one. I just cant see how leaning to talk will be fun for him. PT and OT are fun because they manipulate his little muscles while he plays with toys. He will have to pay attention to his therapist for speech which, if anyone has a toddler, knows they don't pay attention for long.
I am so excited though to here him learn to speak.
Connor is also continuing to get play therapy through the regional center and that also seems to be doing wonders. I think the play therapy is just enhancing all of his other therapies making it that much easier for him to learn.
Now that we have all of his therapies in order, my next task is to figure out how to keep my baby a baby a bit longer. I cant believe I am planning his second birthday already. YIKES.

4 comments:

TwinMomMichelle said...

It sounds like Mr. Connor is doing wonderfully. I'm so glad that he has such good people working with him. I'm sure that makes such a big difference. You are a super mom in my book to handle all of this with so much love and optimism. Connor is lucky to have such a great mom.

Mama2Monkeys said...

Yay for all of connors progress, he's come such a long way. Your doing a great job fighting to get him everything he needs, and so so strong.
i read this to the boys this evening before their nap, and i believe it applies here

Listen the the mustn'ts, child
Listen to the the dont's
Listen to the shouldn'ts
the impossibles, the won'ts
Listen to the never haves then
listen close to me... Anything can happen child, Anything can be- shel silverstein

SeekerofGrace said...

Wow, great progress, Connor! You definitely ARE supermom! Wish we lived closer... Alex would love a playmate! :)

Mama2Monkeys said...

hey mama. i left you something on my blog. go check it out