The doctor said the real results will be received in a day or two and we will find out then what is really going on with his little brain but they are certain it is not Leukodystrophy.
I honestly cant tell you how awful I have felt the last few weeks knowing that I might lose my child by the time he is ten. I hope I never have to know that feeling again and I feel for anyone who has had to go through this.
I thank God for my child every day and as of tonight he just became even more wonderful than he was this morning.
This is the best day EVER.
Now if we can just get going with the genetics doctor things really will look up.
14 comments:
OK now I am sitting here crying right along with you. Thank you so much for letting me share in this journey. I know I have never met you or Connor, but I know what a special little boy he is, and I know, and I have no idea how, that there are great things in store for him. I am so happy for your news! Yay!!!
Hugs,
Kelly
OMG.... I am SO relieved for you :)
so now that i am crying tears of joy for you guys and phil thinks im crazy. YAY!!!!!!!! Oh i am so happy.
That is such good news! I'll be keeping you in my thoughts and prayers that everything continues to go so well for your adorable little man! :)
I am sharing tears of joy with you guys. You are an awesome mom.
What a blessing! I'm so glad to hear that you finally received good news - and the best good news you could get! ::Hugs::
I cant tell you how good my nights sleep was last night. Connor slept great too. Such a relief. Hopefully they will call us today with the final results and tell us everyone is a ok.
I am at my desk crying. I am so beyond happy for you. You deserved this wonderful news. It's only UP from here on out!
sh!t..I have to be anonymous at work!
its me-march mama heather
I have been thinking of you guys a lot these past few days and am overjoyed to hear that Connor's results came back negative re the Leukodystrophy. This is just the best news ever and i'm so relieved for you.
You guys are doing such an awesome job with Connor and he seems to be coming on in leaps and bounds recently. Keeping my fingers crossed for you guys always...xxx
Wow, tears here too. The best news I've heard in a LONG time. The prayers are working! :-)
PS - This is Desiree from WTE - for some reason it's posting as my hub's account.
oh, Sarah!!! I am SO happy for you!!!! This is fantastic news!!!
I am so incrediably happy for you guys! Prayers have been answered!!
YAY!!!!! That's great!
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