Time to say Bye Bye...

We will be losing Connor's current physical therapist next week. He has been seeing Connor twice a week for about a year now.

Connor simply adores Darren. If you even mention his name he goes crawling into the living room to look for him and quietly sits by the door to wait for him.

I know he does not understand that we will be losing him but we are trying to explain that Darren has to go bye bye and we will start going to the hospital for out patient services. I am sure once we get to the new therapists office he wont care. They have toys, what can be better than that.

I just feel so bad that Darren will not be able to see Connor actually walk across the room. He is the one that got Connor this far in the first place.

When he started seeing Connor last year in April, he categorized him at being at a 4-5 month level physically. He has since taught him to roll, crawl, pull up and now take steps. He is now at a 11-12 month level physically. WOW, that is amazing to me in less than a year to get him so far. Now if we can get him to a 22 month level all will be perfect.

Connor will be seeing his new therapist as long as the insurance allows which is 20 sessions. Once we expire those, we will go back to the Regional Center and cross our fingers that we will be able to get back Darren.

I wish I could write the state of California a letter stating how horrible I think there budget cuts are and that they should have re-thought where to make the cuts. This has been such a long process for us setting up three therapies through the insurance just to have the regional center pick him up once again after insurance is up.

Oh well, what ever is best for my son is what I am going to do.

Wow, what a difference....

January 2010
Early April 2008

It is absolutely amazing what a difference almost two years makes in a growing child. Not only has he changed physically, he is also changing mentally. C is becoming very curious and as he begins to move more and become more comfortable with standing and the attempts to walk, he discovers his new ability to do things like annoy his mommy and daddy by pushing the page button on the telephone or turning up the volume on the television to ear plugging loud.

I just cant believe he will soon be two. I am hoping for this year to be even more of a growing experience for all of us. I am positive he will be walking, talking and just making all around progress this year.

We will soon be starting nearly 7-9 hours a week of therapies for C. This will be a time adjusting experience for us all along with the excitement of what he will learn next.

I am at a loss as to what to do for his second party so we are leaning towards a family gathering. He will probably appreciate that more than anything else considering he just truly loves his family.

A new year, a new virus

It seems as though Connor and I are trapped in virus land. As soon as one of us gets better, boom, one of us is sick again and quickly passes it on. Some how Eric has managed to stay virus free.

This one is a bad one. Connor has had a bad poopy virus for almost a week now. The doctor wants us to come back if his bodily functions are not under control by Friday. My son has NEVER had a diaper rash and well, we now have our first. I wish I could get one instead of him. He is miserable, crying and uncomfortable. Lets hope this virus ends the trend of virus passing. I too have this poopy virus and it SUCKS.

Soon to be a New Year...

,I must say that I am somewhat glad to see 2009 leave and excited to see what 2010 brings us. 2009 brought my family many challenges from finding out our son has a chromosome deletion and translocation, to the scary thought of him having a horrible and fatal disease to finding out he has an underdeveloped brain. This year has also brought me many hugs and kisses from a wonderful husband and son. I must say that this year has made me a much stronger and more responsible person and has taught me patience and how to hide my feelings very well.

It has brought out my jealous side and has also brought out my lovable and happy side. I will always remember 2009 as being the year we were scared to death of Leukodystrophy and I will never forget the doctor who told us that Connor had that disease. That was the worst three weeks of my life. Finding out he did not have that disease was by far the happiest day of this past year. It honestly makes Connor's issues seem like nothing. The fact is, Connor is here, healthy and happy. It does not matter how many tests, therapies and headache we go through on a daily basis. We do it for him and will continue to do this as long as need be.

Lets hope 2010 brings us good luck and hope. I am hoping for some genius to come along and create some sort of a chromosome replacement for all of those people out there in the same boat as us.

Holiday time in our home...

I finally got a new computer after being offline for over two weeks. Christmas was wonderful and I always get a little sad when it leaves. But, if I want to be reminded of how wonderful Christmas is, I just have to walk into my living room. There lies the aftermath of a wonderful day. I pick up all the toys and gadgets and leave the room only to come back to see that my mini and large tornado's have been at it again. I finally gave up and just left it as is. I will be begging Eric to put it all away tomorrow while I am at work. I, after all, reorganized Con's room to make room for all of his new gifts.

Speech has been put off...

The evil stomach virus that is going around has bitten my little bug. He woke up Sunday morning covered in vomit. We lounged, snuggled and slept most of the day yesterday.

He went to bed very early last night and never made a peep. I figured the virus must be gone. I went to check on him at 4a.m. and he had gotten sick in the night and never cried out. How sad.

He seems more like himself this morning. He has kept down some pedialite and cereal. I am hoping to get some plain pasta in him after he wakes from his nap.

Sadly, our speech therapy appointment will have to wait for another day. I cant risk getting his therapist sick. I am hoping to get him in sometime again this week.

I need to start him in speech soon. He is now showing some interest in mimicking us. He now sticks out his tongue and blows raspberries. Connor is also now trying to say Elmo and for some random reason Lemonade.

He cracks me up.

Lets hope I can get him a new appointment before the new year.

December 9

even pooh bear loves him.
right after we were engaged. Disneyland, November 2005
The greatest wedding EVER! December 9, 2009

On this day three years ago I married the only person I could ever imagine spending every day of my life with. You are my very best friend and my confidant. I look forward to decades and decades with you.

You and I have created such a wonderful life together and have such a wonderful little family. You are by far one amazing husband and father. Connor and I love you more than anything.