aw well. Cant win them all.
Monday, July 19, 2010
a near impossible task...
getting this kid to keep on his hand splints. I put them on, he rips them off.
aw well. Cant win them all.
aw well. Cant win them all.
Monday, July 12, 2010
Please, tell me again...
Where does the time go?????
Eric, Hank and Connor 2008
Eric, Hank and Connor2010
Eric, Hank and Connor 2008
Eric, Hank and Connor2010Sunday, July 4, 2010
Give him a break. PLEASE!
And here we go again. I had a very emotional week this week after all of Connor's therapy sessions.
On Monday, during speech, I was concerned with Connor regressing from some of the sounds he was making. It is as if they have vanished from his mind. Turns out Connor may have a very serious speech disorder that would cause him to have difficulty learning to speak for many years. If he does have Apraxia it would explain a lot and make us feel a lot better for him not learning to speak yet. Sadly, Connor might be too young still to formally test him for Apraxia so, his therapist is going to do an informal test and see where he might be with out giving him a real diagnosis until he is able to meet the age criteria.
From what I have read, Apraxia is a neurological disorder where the brain is unable to send the message to the mouth. It all makes sense for Con. His brain is underdeveloped and his muscles (the tongue as well) don't work as well as they should. It is going to be on long, long road for speech.
So that was Mondays therapy.
Then we have Thursday...
Connor has PT/OT Thursdays and is there for quite awhile. He loves everyone but has his moments like the rest of us.
I sit in the waiting room and wait for his therapist to come and get me after his sessions. When we spoke on Thursday she mentioned to me that he was hitting quite a bit and pinching other therapists working in the room along with a little boy named Nathan. When he did not want to play with a toy or finish a task (I believe it was stacking pegs) he began mouthing the pegs and/or toy and biting and hitting himself. WHAT? Where is this behavior coming from.
She mentioned to me that he might benefit from behavioral therapy or a behavioral interventionist. I was appalled. It made me feel like Eric and I are not doing our job as a parent teaching him right from wrong. My stomach was in knots as I drove home looking at my sweet boy eating his lunch in the car.
Once home, I put the boy down for a nap and called his regional center coordinator. She said they offer ABA therapy which is something that almost all parents of autistic children want for their kids. Connor, although not autistic, might benefit largely from it. From what she told me, they help with not only behavior issues but also implement all of the things he may be learning in therapy.
After lots of conversations with therapists, my husband, my mom and sister (both in special education), we have come to the conclusion that Connor's behavior is stemmed from his inability to communicate. Makes so much sense now.
So, my mom is bringing home a special program to make a real communication board for Connor and we are now looking into taking American Sign Language classes for him. Baby signs just are not cutting it as Connor is almost at age level receptively so he knows he wants to say more than one little sign.
Lets hope it all comes into play soon.
His speech therapist is taking tomorrow off to observed the holiday so we will have to wait until the following week to have a real talk about this. I really need to get Connor on a program where he works on the same things over and over and not try to do new sounds each week.
ACK, this is a bit overwhelming for me as I sit here and write this.
The beauty of Connor though, he NEVER complains.
On Monday, during speech, I was concerned with Connor regressing from some of the sounds he was making. It is as if they have vanished from his mind. Turns out Connor may have a very serious speech disorder that would cause him to have difficulty learning to speak for many years. If he does have Apraxia it would explain a lot and make us feel a lot better for him not learning to speak yet. Sadly, Connor might be too young still to formally test him for Apraxia so, his therapist is going to do an informal test and see where he might be with out giving him a real diagnosis until he is able to meet the age criteria.
From what I have read, Apraxia is a neurological disorder where the brain is unable to send the message to the mouth. It all makes sense for Con. His brain is underdeveloped and his muscles (the tongue as well) don't work as well as they should. It is going to be on long, long road for speech.
So that was Mondays therapy.
Then we have Thursday...
Connor has PT/OT Thursdays and is there for quite awhile. He loves everyone but has his moments like the rest of us.
I sit in the waiting room and wait for his therapist to come and get me after his sessions. When we spoke on Thursday she mentioned to me that he was hitting quite a bit and pinching other therapists working in the room along with a little boy named Nathan. When he did not want to play with a toy or finish a task (I believe it was stacking pegs) he began mouthing the pegs and/or toy and biting and hitting himself. WHAT? Where is this behavior coming from.
She mentioned to me that he might benefit from behavioral therapy or a behavioral interventionist. I was appalled. It made me feel like Eric and I are not doing our job as a parent teaching him right from wrong. My stomach was in knots as I drove home looking at my sweet boy eating his lunch in the car.
Once home, I put the boy down for a nap and called his regional center coordinator. She said they offer ABA therapy which is something that almost all parents of autistic children want for their kids. Connor, although not autistic, might benefit largely from it. From what she told me, they help with not only behavior issues but also implement all of the things he may be learning in therapy.
After lots of conversations with therapists, my husband, my mom and sister (both in special education), we have come to the conclusion that Connor's behavior is stemmed from his inability to communicate. Makes so much sense now.
So, my mom is bringing home a special program to make a real communication board for Connor and we are now looking into taking American Sign Language classes for him. Baby signs just are not cutting it as Connor is almost at age level receptively so he knows he wants to say more than one little sign.
Lets hope it all comes into play soon.
His speech therapist is taking tomorrow off to observed the holiday so we will have to wait until the following week to have a real talk about this. I really need to get Connor on a program where he works on the same things over and over and not try to do new sounds each week.
ACK, this is a bit overwhelming for me as I sit here and write this.
The beauty of Connor though, he NEVER complains.
Tuesday, June 22, 2010
and the bravery award goes to....
Mr. Connor Moody!!!!!!!
You have gone through and continue to go through so much with hardly a peep or complaints.
You have therapy several times a week, have to see countless numbers of doctors, wear braces on your hands and legs and have nothing but smiles to offer to people.
(before surgery)
(checking out his GIANT booties)
You had surgery yesterday morning, are in an insane amount of pain but still continue to smile and dance while laying lazily on the couch.
(right after surgery. lots of pain)
The nurse at the hospital did a horrible job taking out your I.V. from your foot and you hardly screamed even though it was clear you were in agony.
We can hardly change your diaper right now without you wincing but somehow you still manage to look into mommy and daddy's eyes and say dack oon (love you).
For this Connor-you are by far the bravest little boy mommy and daddy will ever know and you deserve this award with love!
You have gone through and continue to go through so much with hardly a peep or complaints.
You have therapy several times a week, have to see countless numbers of doctors, wear braces on your hands and legs and have nothing but smiles to offer to people.
(before surgery)
(checking out his GIANT booties)You had surgery yesterday morning, are in an insane amount of pain but still continue to smile and dance while laying lazily on the couch.
(right after surgery. lots of pain)
The nurse at the hospital did a horrible job taking out your I.V. from your foot and you hardly screamed even though it was clear you were in agony.
We can hardly change your diaper right now without you wincing but somehow you still manage to look into mommy and daddy's eyes and say dack oon (love you).
For this Connor-you are by far the bravest little boy mommy and daddy will ever know and you deserve this award with love!
Sunday, June 20, 2010
To my wonderful husband
Happy Father's Day. You are an incredible father to our son. Connor and I are so lucky to have you in our lives.
Enjoy this day with your boy!
We love you!
Enjoy this day with your boy!
Thursday, June 17, 2010
A big boy now...
Connor has therapy several times a week and on Thursdays we find ourselves there for hours. It is by far his favorite day of therapy so I am sure he doesn't mind the long sessions.
Today was a big day for Connor. He was able to climb the stairs holding onto just one hand of the therapist and he practiced walking on a balance beam. As his therapist came out to tell me all of this good progress she also mentioned to me that she now believes he can be classified in the 15-18 month category physically.
This is amazing news. Six months ago he was 12-15 months. He is beginning to progress quickly.
I am a very proud mommy.
Today was a big day for Connor. He was able to climb the stairs holding onto just one hand of the therapist and he practiced walking on a balance beam. As his therapist came out to tell me all of this good progress she also mentioned to me that she now believes he can be classified in the 15-18 month category physically.
This is amazing news. Six months ago he was 12-15 months. He is beginning to progress quickly.
I am a very proud mommy.
Friday, June 11, 2010
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