The happiest baby in the world...

NOT ALWAYS.

this is what happens when you combine too many toys and the need to get ready for bed.

July is around the corner...

With July quickly approaching I can not help but begin to get nervous. Connor will be a very busy boy the first two weeks of July with lots of appointments and tests. These things will finally give us the answers or at least begin to give us the answers to our month long worry.

I have been waiting since June 10 to finally see and speak to Con's genetics doctor face to face. I cant wait to get to the 10th of next month.

My biggest fear is of course, the upcoming MRI. The actual test does not make me nervous because I truly trust the doctors and know they have his best interest in mind (I might change my mind and begin to freak at any moment). It is the results that are weighing heavy on my mind lately. I wish I could google search all the info I know and have the EXACT result at hand to ease my mind a bit.

Eric and I will be getting our blood drawn tomorrow morning(required for genetics testing) to see if Connor's missing chromosome is a normal variance of one of us or something that has started with him. The results of that freak me out even more. If Eric or I also have a missing 21 then does that mean something really is wrong with my sweet boy's little brain?

Why cant I just sit back and relax and not worry so much. I try to distract myself but as the days draw closer, my mind begins to go into overdrive. I am now losing sleep. I know I must wait to cross the bridge when we come to it but, I think I am already at the bridge...WAITING.

Once Connor wakes up, everything will be fine. That smiling face of his is enough to make anyone want to perk up. He is absolutely the very best thing we could have ever asked for.

And the appointments continue...

That short week long break from the hub bub of my life was much needed but too short lived. We are back at it now, making appointments, going to PT and going to work.

Connor had his 15 month check up today and we also got the approval for Connor's MRI. Connor is now 31 inches long and weighs 23 pounds 6 oz. He is such a good sized boy. His pediatrician was truly so proud of how happy he was going through everything that he is right now. He had one shot and DID NOT MAKE A PEEP. Now that is one brave boy.

His pediatrician said that she was so proud of the progress he is making in PT. She flopped him on his belly and he pushed up immediately. She also mentioned that he was slightly advanced in speech which is such great news to me. It is nice for him to be making such great progress with everything.

Connor's doctor said that she can almost guarantee Connor will need surgery to correct the Metopic Ridge on Connor's skull. We will be hooking up with a cranial facial team at Cedars when we have our genetics appointment on July 10. She gave me all the paper work needed to get his MRI done and told me I could go to the hospital of my choice (thank goodness for wonderful insurance).

She did not talk much about the luekodystrophy that Connor might or might not have. I am thinking the only thing that will give us ANY answers is this MRI. I am now waiting on the hospital to contact the pediatricians office to make the appointment for Con.

He is now napping quietly and I am so proud of my little brave boy!

Happy Father's Day

My beautiful boy and wonderful husband. Two of the most wonderful things in this world.

Bring on the fun...

So, I had decided that my little family needed a short break from the ups and downs of our little life for a few days and we are doing just that.
To start it off, we had a wonderful dinner with my family last night to celebrate my upcoming birthday. Connor got to see his my cousins who we hardly see anymore, my aunt, sister, nieces and of course, his NaNa. Eric and I really enjoyed ourselves.
We will continue the wonderful break tonight at dinner for Father's Day with Eric's parents. We will be going to a Mexican restaurant Eric's pop used to take him. He will now be going with his son. After dinner we will drive to Disneyland where we will spend the next few days.

Disneyland is doing a promotion this year where you are able to get in for free on your birthday. I have my coupon all printed and ready to go for Monday. Because we are Annual Pass holders, I will already be getting in free that day but, because I have the coupon and it will be my birthday, I get $69.00 (equal to park admission) worth of Disney merchandise. Connor will be coming up a winner this weekend.

I cant wait to get to the hotel. I understand Disneyland is a mere hour or so away from me but I have a very bizarre obsession with hotels. I LOVE them.

After we return from our trip Tuesday evening, we will fall back into routine of making appointments for Connor and going back to work and all the good stuff that goes along with this life I call mine! I truly do love my life as hectic and confusing as it can be.

I thought I was on a break?

If I am supposed to take a break that I wanted then why the hell do I ONLY think about stuff that is going on.
Come on now, we are supposed to be enjoying a great few days together as a little family and all I can think about are pediatrician visits, MRI's and physical therapy. Come on brain, think about balloons or puppies or anything for that matter!
ACK.

You deserve a break

We have decided to take a break from doctors, phone calls to doctors and appointments for a few days. Connor is a happy kid and has never once complained about what is going on right now and I sort of want to keep it that way.

His pediatrician was trying to press me to bring Connor in immideatly for a physical exam so that he could get the ok for the MRI. Connor has an apt. next Thrusday for his 15 month check up. I see NOTHING wrong with waiting until then. I AM going to get him an MRI and I AM going to do every single thing his doctors suggest but, this is a lot of news for us to take in and a lot of possibilites for our families to get used to so, I think a break is much needed. Heck, its only a week.

His pediatrician finally agreed with me and told me it would really make no difference. I am making the appointment for the MRI today only because I have a feeling I might not get him in for a week or two.

Other than that phone call, we are going to enjoy Father's Day, a few days off as a family next week, Disneyland for my birthday (maybe) and just not think about the scary stuff.

Connor deserves a break or maybe a bath?